Welcome to the website of the
Hereditary TTP Registry
Hereditary Thrombotic Thrombocytopenic Purpura (hTTP) or Upshaw-Schulman Syndrome (USS) is an ultra-rare and complex blood coagulation disease
read more about hereditary TTP
At present, the Hereditary TTP Registry has enrolled 231 participants from 18 different countries
click here to know which sites are involved
«The fact that the medical research of a son of the Mississippi Delta, born in Louise, MS in 1929, is being continued by a team of researchers all over the world, still excites me!»

Cristie Upshaw Travis
Daughter of Dr. Jefferson D. Upshaw
The Hereditary TTP Registry participated in the first-in-human study evaluating a recombinant human ADAMTS13 as therapeutic option in the treatment of congenital TTP
click here to read more about the study

Contact us

For questions or further information about the Hereditary TTP Registry, please contact us through the coordinating team or by sending an email to support@ttpregistry.net

Department of Hematology and Central Hematology Laboratory

Inselspital, Bern University Hospital, University of Bern, Switzerland
&

Department for BioMedical Research (DBMR)

University of Bern, Switzerland

Postal address:

Murtenstrasse 40

Bern 3008

Switzerland