Welcome to the website of the
Hereditary TTP Registry
Hereditary Thrombotic Thrombocytopenic Purpura (hTTP) or Upshaw-Schulman Syndrome (USS) is an ultra-rare and complex blood coagulation disease
read more about hereditary TTP
At present, the Hereditary TTP Registry has enrolled 231 participants from 18 different countries
click here to know which sites are involved
«The fact that the medical research of a son of the Mississippi Delta, born in Louise, MS in 1929, is being continued by a team of researchers all over the world, still excites me!»

Cristie Upshaw Travis
Daughter of Dr. Jefferson D. Upshaw
The Hereditary TTP Registry participated in the first-in-human study evaluating a recombinant human ADAMTS13 as therapeutic option in the treatment of congenital TTP
click here to read more about the study

Login Registry

Access to original Registry database

For collaborators, who have enrolled patients BEFORE 01.12.2018, please click on the following link to get to the login page:

Access to upgraded Registry database

For collaborators, who have enrolled and will enrol patients AFTER 01.12.2018, please click on the following link to get to the login page:

In 2020, we will migrate all data into the upgraded system. You will be informed in due time when your data will be moved. For questions, please contact support@ttpregistry.net