Links

Information on TTP (hereditary as well as acquired TTP)

Wikipedia
The Wikipedia article about hereditary thrombotic thrombocytopenic purpura (hTTP) was written by our group.
Wikipedia

 

Understanding TTP
A website committed to inform, educate and support the understanding of thrombotic thrombocytopenic purpura (TTP):
http://www.understandingttp.com/

 

OMIM
Online Mendelian Inheritance in Man® (OMIM):
#274150

 

ORPHANET
The portal for rare diseases and orphan drugs:
http://www.orpha.net/

 

TTP on TV in the USA
Dr. James N. George was interviewed at the ASH 2013 congress about TTP and related research

 

Networking and support groups

Canada
Answering T.T.P. - Thrombotic Thrombocytopenic Purpura Foundation
www.answeringttp.org

UK
TTP Network is a UK patient-led organisation
www.ttpnetwork.org.uk

United States of America
Congenital TTP - The American TTP community
www.congenitalttp.com

Germany and Switzerland

TTP-Forum -Information portal for doctors and patients

www.ttpforum.de

TTP on Facebook

Answering T.T.P on Facebook

Click  here to visit the Answering T.T.P. Facebook Page.

 

TTP Network auf Facebook

This private group is aimed at everyone involved in TTP.  Click here to get to the group.

 

TTP (Thrombotic Thrombocytopenic Purpura) Supporters

Public Facebook group to support people with TTP.  Here you get to the group.


United States Thrombotic Microangiopathy Consortium - USTMA

On this Facebook page there are, among other things, interesting videos about the different forms of TTP. Click  here to visit the Page.