Hereditary TTP Registry
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  • GTH 2017
  • Hereditary TTP Registry

    Welcome to the website of the
    Hereditary TTP Registry

  • Hereditary Thrombotic Thrombocytopenic Purpura (TTP)

    Hereditary Thrombotic Thrombocytopenic Purpura (hTTP) or Upshaw-Schulman Syndrome (USS) is an ultra-rare and complex blood coagulation disease

    read more about hereditary TTP

  • Over 200 participants from more than 40 different sites all over the world

    At present, the Hereditary TTP Registry has enrolled 231  participants from 18 different countries

    click here to know which sites are involved

  • Cristie Upshaw Travis

    «The fact that the medical research of a son of the Mississippi Delta, born in Louise, MS in 1929, is being continued by a team of researchers all over the world, still excites me!»

     

    Cristie Upshaw Travis

    Daughter of Dr. Jefferson D. Upshaw

  • first-in-human study

    The Hereditary TTP Registry participated in the first-in-human study evaluating a recombinant human ADAMTS13 as therapeutic option in the treatment of congenital TTP

    click here to read more about the study

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Inselspital Universitätsspital Bern
Universität Bern
GTH 2017 Basel, Switzerland - 61st Annual Meeting of the Society of Thrombosis and Hemostasis Research
GTH 2017 Basel, Switzerland - 61st Annual Meeting of the Society of Thrombosis and Hemostasis Research