Welcome to the website of the
Hereditary TTP Registry
Hereditary Thrombotic Thrombocytopenic Purpura (hTTP) or Upshaw-Schulman Syndrome (USS) is an ultra-rare and complex blood coagulation disease
read more about hereditary TTP
At present, the Hereditary TTP Registry has enrolled 231 participants from 18 different countries
click here to know which sites are involved
«The fact that the medical research of a son of the Mississippi Delta, born in Louise, MS in 1929, is being continued by a team of researchers all over the world, still excites me!»

Cristie Upshaw Travis
Daughter of Dr. Jefferson D. Upshaw
The Hereditary TTP Registry participated in the first-in-human study evaluating a recombinant human ADAMTS13 as therapeutic option in the treatment of congenital TTP
click here to read more about the study

Advisory Board

Yoshihiro FUJIMURA, MD PhD
Director General

Japanese Red Cross Kinki

Block Blood Center (BBC)

7-5-17. SAITOASAGI, IBARAKISHI,
OSAKA 567-0085

JAPAN

Phone+81 7 2643 1007
Fax+81 7 2643 1055

E-Maily-fujimura@kk.bbc.jrc.or.jp

Deirdra R. TERRELL, PhD
IRB approval & authorities; Statistics, Extern
University of Oklahoma Health Sciences Center, Department of Medicine

PO Box 26901
73126-0901 Oklahoma City
United States of America
E-MailDeirdra-Terrell@ouhsc.edu

Sara K. VESELY, PhD
Statistician, Extern
University of Oklahoma Health Sciences Center, Department of Biostatistics and Epideiology

801 NE 13th Street
OK 73104 Oklahoma City ,CHB 358¦ OKC
United States of America
Phone+1 405 271-2229 ex. 48069
Fax+1 405 271-2068
E-Mailsara-vesely@ouhsc.edu