«The fact that the medical research of a son of the Mississippi Delta, born in Louise, MS in 1929, is being continued by a team of researchers all over the world, still excites me!»
The Hereditary TTP Registry participated in the first-in-human study evaluating a recombinant human ADAMTS13 as therapeutic option in the treatment of congenital TTP
Today, the U.S. Food and Drug Administration approved Adzynma, the first recombinant (genetically engineered) protein product indicated for prophylactic (preventive) or on demand enzyme replacement...
Takeda Announces Favorable Phase 3 Safety and Efficacy Results of TAK-755 as Compared to Standard of Care in Congenital Thrombotic Thrombocytopenic Purpura (cTTP)
Monica presented the winning poster entitled "Substantial differences in the immune response to ADAMTS13 in immunemediated and in plasma-treated hereditary Thrombotic Thrombocytopenic Purpura (TTP)"...
The highest and prestigious award of the Society of Thrombosis and Hemostatis (GTH), the Alexander Schmidt Preis 2022 was awarded to Prof. Johanna Kremer due to her devotion and work in the filed of...
Dr. Kazuya Sakai and Prof. Masanori Matsumoto successfully published in Journal of Thrombosis and Hemostatis a really interesting article about "success and limitations of plasma treatment in pregnant...
The migration of all patients in the new database is concluded. Further information will be provided in the coming weeks by the Manager of the Registry
Our former staff member Anette van Dorland was co-author of the article "Hereditary Thrombotic Thrombocytopenic Purpura in a 9-Month Old: Diagnosing and Managing an Ultra-rare Disorder" which was...
The new database is available again for all new patients and whose enrolled from January 2019. If you have any questions, please contact us: support@ttpregistry.net
Erika Tarasco had an oral presentation about hTTP Registry data and Prof. Dr. Johanna A. Kremer Hovinga was discussing congenital TTP in a "meet the experts" session.
Prof. Dr. Johanna A. Kremer Hovinga was awarded the Günter Landbeck Excellence Award for her work in the field of hereditary thrombotic thrombocytopenic purpura.
A review in the New England Journal of Medicine on hereditary thrombotic thrombocytopenic purpura (hTTP) was published by two members of our Steering Committee: Prof. Johanna A. Kremer Hovinga and...
Erika Tarasco, Isabella Aebi-Huber and Katarzyna Yalowiec travelled to Warsaw on 23-25th of July 2019 to help in collecting data for the yearly follow-up and recruiting new hereditary TTP patients to...
We kindly request all participating sites to complete a follow-up visit in the coming months. In autumn, we will start preparing a manuscript from the follow-up data of the Registry. In case you need...
The CSL Behring Award 2019 for the best degree in Biomedical Sciences went to Vera Imboden this year. Vera had carried out her Master thesis entitled "Dysregulated autophagy in immune-mediated...
The Hereditary TTP Registry participated in the first-in-human study evaluating a recombinant human ADAMTS-13 as therapeutic option in the treatment of congenital TTP. Click here to view the results.
