«The fact that the medical research of a son of the Mississippi Delta, born in Louise, MS in 1929, is being continued by a team of researchers all over the world, still excites me!»
The Hereditary TTP Registry participated in the first-in-human study evaluating a recombinant human ADAMTS13 as therapeutic option in the treatment of congenital TTP
Former staff members 2020-2020 Rebecca Scheidegger, assisting project management and data entry
2017-2019 H. Anette van Dorland, Project Management
2013–2016Corinne Eschler,…
Migration concluded The migration of all patients in the new database is concluded. Further information will be provided in the coming weeks by the Manager of the Registry
The migration of all patients in the new…
24.10.2020
About hTTP Epidemiology
The incidence of acute TTP in adults is around 1.7-4.5 per million and year [4][5]. These cases are nearly all due to the autoimmune form of TTP, where autoantibodies inhibit ADAMTS13…
20.10.2020
Frequently asked questions What does it mean that my data are pseudonymised?
During enrolment into the study, personal data about you will be entered into the computer. From these personal data an unique code…
19.10.2020
TTP Research in Bern
Coagulation and pedigrees have fascinated me since I was about 13 or 14 years old. After medical school I worked first as a research fellow and then trained in clinical hematology at the Department…
15.10.2020
Steering Committee Members Reinhard SCHNEPPENHEIM, MD PhD
Co-Investigator University Medical Center Hamburg-Eppendorf, Department of Pediatric Hematology and Oncology Martinistr 52 D-20246 Hamburg Germany Phone+49…
12.10.2020
Coordinating Team
Former Staff members
Dr. Erika Tarasco
Project Management
Phone +41 31 632 56 90 Fax +41 31 632 18 82 E-Mail erika.tarasco@insel.ch
Isabella Aebi…
