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The International Hereditary TTP Registry was awarded the Günter Landbeck Excellence Award
Prof.  Dr. Johanna A. Kremer Hovinga was awarded  the Günter Landbeck Excellence Award for her work in the field of hereditary thrombotic thrombocytopenic purpura. The Günter Landbeck…
12.11.2019
 
Publication on Hereditary TTP from Prof. Dr. Johanna A. Kremer Hovinga
A review in the New England Journal of Medicine on hereditary thrombotic thrombocytopenic purpura (hTTP) was published by two members of our Steering Committee: Prof. Johanna A. Kremer Hovinga and…
24.10.2019
 
Extensive data collection with our collaborators for the Registry in Warsaw Poland
Erika Tarasco, Isabella Aebi-Huber and Katarzyna Yalowiec travelled to Warsaw on 23-25th of July 2019 to help in collecting data for the yearly follow-up and recruiting new hereditary TTP patients to…
13.08.2019
 
The Hereditary TTP Registry attended ISTH 2019 meeting in Melbourne, Australia
The Hereditary TTP Registry attended the ISTH 2019 meeting.  Our data were proudly presented by Silvan Heeb and Erika Tarasco The Hereditary TTP Registry attended the ISTH 2019…
08.08.2019
 
Follow-up data requested
We kindly request all participating sites to complete a follow-up visit in the coming months. In autumn, we will start preparing a manuscript from the follow-up data of the Registry. In case you need…
21.05.2019
 
Publication_Guidelines_HereditaryTTP_Registry_v1_06.05.2019.pdf
Publication Guidelines Approved by the Steering Committee of the Hereditary TTP Registry on 6th of May 2019. Version 1.0 (06.05.2019) Content 1. Goals 2 2. Scope of the Guidelines and types of…
08.05.2019
 
Publication Guidelines approved
The Steering Board approved the Publication Guidelines of the Hereditary TTP Registry on 6th of May 2019 The Publication Guidelines are now available for implementation by investigators and…
06.05.2019
 
Vera Imboden received award for best degree
The CSL Behring Award 2019 for the best degree in Biomedical Sciences went to Vera Imboden this year. Vera had carried out her Master thesis entitled "Dysregulated autophagy in immune-mediated…
07.03.2019
 
Publication from the Hereditary TTP Registry
First publication on data from the Hereditary TTP Registry released online  Please click here to see the scientific publication First publication on data from the Hereditary TTP Registry…
06.03.2019
 
results 51 until 60 of 97