«The fact that the medical research of a son of the Mississippi Delta, born in Louise, MS in 1929, is being continued by a team of researchers all over the world, still excites me!»
The Hereditary TTP Registry participated in the first-in-human study evaluating a recombinant human ADAMTS13 as therapeutic option in the treatment of congenital TTP
Italian_PatInfo_IC.pdf Studio „Correlazione tra fenotipo e genotipo nella TTP ereditaria (sindrome di Upshaw-Schulman)“ Informazioni per il paziente sullo studio „Correlazione tra fenotipo e genotipo nella TTP ereditaria…
11.02.2018
Japanese_PatInfo_IC.pdf Study titled “Phenotype and genotype correlation in hereditary TTP (Upshaw-Schulman Syndrome)” 患者の方への研究情報 “遺伝性血栓性血小板減少性紫斑病おける、表現型と遺伝型の相関関係 (アップショウ‐シュルマン 症候群)” 患者の方へ: 1. 研究の一般的な情報 血栓性血小板減少性紫斑病 (略して…
11.02.2018
Norwegian_PatInfo_IC.pdf Pasientinformasjon om studien «Fenotype- og genotype-korrelasjon ved hereditær TTP (Upshaw-Schulman-syndrom)» Kjære pasient! 1. Generell informasjon om studien Trombotisk trombocytopenisk purpura…
11.02.2018
Polish_PatInfo_IC.pdf Informacje o badaniach klinicznych dla pacjenta „Wzajemne oddziaływanie fenotypu i genotypu we wrodzonej formie TTP (Zespół Upshawa-Schulmana)“ Szanowna Pacjentko, szanowny Pacjencie 1. Ogólne…
11.02.2018
Portugese_PatInfo_IC.pdf Estudo “Correlação Fenópito e Genótipo em PTT hereditária (Síndrome de Upshaw – Schulman)” Informações ao paciente sobre o estudo entitulado “Correlação Fenópito e Genótipo em PTT hereditária…
11.02.2018
Spanish_PatInfo_IC.pdf Información al paciente con respecto al estudio titulado “Correlación del fenotipo y genotipo en la PTT hereditaria (Síndrome de Upshaw-Schulman)” Estimado Paciente: 1. Información general sobre el…
11.02.2018
Turkish_PatInfo_IC.pdf “Kalıtsal TTP’de Fenotip ve Genotip Korelasyonu (Upshaw-Schulman Sendromu)” başlıklı çalışma için hasta bilgilendirme formu Sayın Hasta : 1. Çalışma hakkında genel bilgi Trombotik-trombositopenik…
11.02.2018
Publication on TTP and HUS A new review published from Bern on thrombotic thrombocytopenic purpura (TTP) and hemolytic uremic syndrome (HUS)
A new review published from…
22.01.2018
First-in-human study The Hereditary TTP Registry participated in the first-in-human study evaluating a recombinant human ADAMTS-13 as therapeutic option in the treatment of congenital TTP. Click here to view the…
09.11.2017
New staff member October 2017 The TTP Registry welcomes a new staff member.
The TTP Registry welcomes a new staff member. Dr. Anette van Dorland will be joining the team as project manager.
